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When Mental and Chronic Illness Collide

A Spoonie's Journey

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Psychology

What is me?

It's been a really hard few days with my dysautonomia and EDS flaring, migraine free mostly thankfully. Lots of super emotional things, like finally saying goodbye to a 5 year relationship, being told that I can't be associated with anymore... Continue Reading →

When Everyone Told Me I Needed to Take a Day Off

It would be amazing to take a day off.  To not deal with everything going on in my head.  To not be anxious and not be stressed and not be a hot mess all the time (and this is one... Continue Reading →

What to do When Your Support System and Foundation Crumble

You rebuild. Because you are a Warrior. You are a mother fucking tigress Warrior Princess Zebracorn. You have 9 lives and you always land on your feet. Pick yourself up off the ground and be the Warrior you know you... Continue Reading →

Hope

Hope. When I have nothing left in me, when I have no more spoons and no more energy and no more tears to cry, I have hope.

When the Geneticist Says She has to Ask the Lab…

Yes, that's me. I'm the person who requires the 100-year-old geneticist, with all of her experience, to have to call the lab with a question about the result. Why?Because I'm a damn zebra unicorn.  Because I can.   Because it's me.... Continue Reading →

Unity

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Suffering In Silence

I wish I was poet… but I’m not. So I’m going to let ChronicallyKaty say what I can’t put into words.

Chronically Katy

Here’s to the people who suffer daily,

The ones whose pain is never failing.

The ones who cry themselves to sleep,
Yet appear to have smiles running deep.
The ones who fight for the day that life will no longer be a fight,
Despite knowing that they will never see that light.
They are the ones that are strong,
They are the ones that consistently hold on.
These are the people that refuse to appear weak,
Even when their future is bleak.
They might die tomorrow,
Their lives may cause great sorrow.
Yet, they keep living
                                   living
                                            living
Honestly do they have another option?
It comes down to life and…

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A Chronically Ill Teen’s Take On The ACA

So true!

Chronically Katy

I am 15 years old, and I have five chronic illnesses. I could go into specifics on which illnesses and what symptoms they cause, but at this moment that does not matter. What matters right now is how they could affect my future and more importantly my access to health care.

Last night the Senate took a vote on the Affordable Care Act. Donald Trump has said that if the ACA is repealed, he does not support repealing the clause that allows those of us with preexisting conditions to remain insured. But just before 1:30 this morning, senators voted on an amendment that would have kept the pre-existing conditions clause intact even if the ACA is repealed, and they voted against it. No action has been taken yet on effectively repealing the ACA, and no further statements have been made on the issue, but I cannot help but freak out. I am…

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