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When Mental and Chronic Illness Collide

A Spoonie's Journey

Category

Life

Their’s is the Kingdom of God

There is a time when you admit defeat.  You don't always do it, and you don't do it if it can be avoided.  If you do have to admit defeat, do it gracefully, humbly and quietly. We all get in... Continue Reading →

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Her Name was Barbara

She came in quietly, with barely a peep.  Her family was quiet, the nurses gentle. I sat quietly behind my curtain, respecting their privacy. In the beginning it seemed simple--she had a UTI.  But the thing is, when you are... Continue Reading →

The Day I Got My Genetic Testing Results

I called a few times a week past the expected four weeks of testing after my blood was drawn to see if the results were in yet. Finally, I got a “Yes, they are in.” There was a but though….... Continue Reading →

Hope

Hope. When I have nothing left in me, when I have no more spoons and no more energy and no more tears to cry, I have hope.

If you give a Spoonie some spoons…

When you are and have been feeling so good for a few days, you forget that spoonie part of your life.  You forget that you have limitations, that things cost spoons.  You go and you go, and you have a... Continue Reading →

The Nitty Gritty of EDS

Sleep is something that I never worry about, considering the amount of medication I take at night that sedates me. What I wasn't prepared for after my EDS diagnosis was the "waking up" part.  What I mean by that is... Continue Reading →

To the Spoonie Who Doesn’t Think They Deserve Love

The last two nights, I’ve had dreams about my partner cheating on me. I wake up in the morning with a giant pit in my stomach, the kind that comes from a dream that just literally makes you sick. And... Continue Reading →

How to Help A Loved One with Mental or Chronic Illness

Recently, I was talking with another spoonie.  She was talking about the stigmatization she faces not only from the world but from her own family regarding her mental health diagnosis.  Her family keeps telling her ‘just be stronger,’ ‘just get it... Continue Reading →

Energy Giving, Energy Draining

  This originally appeared as a contribution on MakeItUltra, written by me as a contributior's post. My mother has always preached to me about “energy giving, energy draining.” It has been such an important life lesson, and recently I learned... Continue Reading →

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