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When Mental and Chronic Illness Collide

A Spoonie's Journey

The Spoon Theory

You may see a lot of references to "Spoonies" on my page.  A spoonie is someone who an illness, which is a term from a post by Christine Miserandino. You can find out all about the Spoon Theory here.

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THE BIG NEWS

My mom is becoming a LuLaRoe consultant because of how much it has changed my life. Go join our Facebook VIP group here.  Our Instagram is lularoegaynepinto.  We are doing a BLACK LEGGINGS giveaway for adding and tagging right now,... Continue Reading →

When Everyone Told Me I Needed to Take a Day Off

It would be amazing to take a day off.  To not deal with everything going on in my head.  To not be anxious and not be stressed and not be a hot mess all the time (and this is one... Continue Reading →

Can You Guess The New Project Yet?

Today, I got dressed. Yesterday, I got dressed. In fact, I’ve gotten dressed every say since February 5.  Why is that important? What does it matter that I got dressed? It matters because I haven’t been getting dressed for the last... Continue Reading →

New Project

I have a new project in the works with my mom, and I think all of my spoonie followers will love it.... Stay tuned in the next few weeks!!!  

What to do When Your Support System and Foundation Crumble

You rebuild. Because you are a Warrior. You are a mother fucking tigress Warrior Princess Zebracorn. You have 9 lives and you always land on your feet. Pick yourself up off the ground and be the Warrior you know you... Continue Reading →

The Day I Got My Genetic Testing Results

I called a few times a week past the expected four weeks of testing after my blood was drawn to see if the results were in yet. Finally, I got a “Yes, they are in.” There was a but though….... Continue Reading →

Hope

Hope. When I have nothing left in me, when I have no more spoons and no more energy and no more tears to cry, I have hope.

When the Geneticist Says She has to Ask the Lab…

Yes, that's me. I'm the person who requires the 100-year-old geneticist, with all of her experience, to have to call the lab with a question about the result. Why?Because I'm a damn zebra unicorn.  Because I can.   Because it's me.... Continue Reading →

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